DIY Photography

Your one stop shop for everything photo-video

  • News
  • Inspiration
  • Reviews
  • Tutorials
  • DIY
  • Gear
Search

Submit A Story

Saving Eliza – The story of a successful fundraising project to save a life

Nov 21, 2014 by Stefan Kohler Add Comment

  • Share
  • Tweet
  • Flipboard
  • WhatsApp

About 8 month ago, we shared an interview with Benjamin VonWong about his work in this video:

It’s the story of Eliza O’Neill, turned 5 years old a few days ago (Happy Birthday, Eliza!).
She was diagnosed one year ago with a rare terminal genetic disease, called Sanfilippo Syndrome–Type A. Her parents were told that they would have to watch her daughter fade away before their eyes.

But there was a little light at the end of the tunnel:

Researchers at Nationwide Children’s Hospital have discovered a breakthrough gene therapy treatment that can stop this disease.  This treatment could save Eliza and literally stop this disease in its tracks overnight! 

The Problem:

The research conducted points to this clinical trial being the answer to stopping this disease, which means the only thing standing between Eliza and her miracle, is money. The trial is lacking funding to make the medicine, administer. 

So the O’Neill’s planned to make a (hopefully viral) video and start a GoFundMe-Campaign to pay for that cure. 

What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life? What would any parent do?

Bildschirmfoto 2014-11-21 um 20.55.41

 

Today, the fundraising reached the goal.

I am sure a lot of you guys already heard about the campaign – after all it started with the help of some Photographers.

At first there was DL Cade (PetaPixel) asking Benjamin VonWong, who did an amazing job with that video. After a few weeks, SmugMug started a very clever “buy a print – help safe a live“-project, with the top photographers of our time. The hall of fame (each one generated more than 400$) could be my personal “favorite Photographers”-List as well: Bill Geckas, Benjamin Von Wong, Dave Brosha, Julia Kuzmenko, Robert Hall, Renee Robyn, Danielle Tunstall, Joel Robinson… The list is much longer –  this is just the gallery of  “the 12 most effective”.

"buy a print – help safe a live" - SmugMug's "Hall of fame"

“buy a print – help safe a live” – SmugMug’s “Hall of fame”

I am very happy to see a lot of friend help and contribute to make this happen. Now we keep our fingers crossed and say: Stay strong little Eliza!

FIND THIS INTERESTING? SHARE IT WITH YOUR FRIENDS!

  • Share
  • Tweet
  • Flipboard
  • WhatsApp

Related posts:

Interview With Benjamin Von Wong On The Ongoing Effort To Save Eliza’s Life PSA: Amazon Photos auto-save might not be auto-saving all of your raw files Drone pilot accidentally discovers woman stranded on the beach, helps saving her life  Dear TSA, This Tip Can Save Your Project

Filed Under: news Tagged With: Benjamin Von Wong, DL Cade, Sanfilippo, savingeliza

Stefan Kohler: from diyphotography.net

About Stefan Kohler

Stefan Kohler is a full-time retoucher. He's from Germany and likes bacon. In the last years, he built up a broad community around his retouching classes at the Infinite tool's website. You can follow his work oninstagram.

« Is It Ever Okay To Add A Lens Flare In Photoshop? Yes, And Here’s How To Do It
Thomas Shahan Shares His Methods In Macro Photography »

Submit A Story

Get our FREE Lighting Book

DIYP lighting book cover

* download requires newsletter signup
DIYPhotography

Recent Comments

Free Resources

Advanced lighting book

Recent Posts

  • Cameraframe is a piece of wall art made from real camera parts
  • Photographer shares the story behind the iconic Columbia Pictures logo
  • Nikon releases super fast NIKKOR Z DX 24mm f/1.7 lens for their mirrorless lineup
  • Here’s a bullet time video booth you can build yourself
  • Ricoh has discontinued the HD PENTAX-DA 21mm F3.2AL Limited silver lens

Udi Tirosh: from diyphotography.netUdi Tirosh is an entrepreneur, photography inventor, journalist, educator, and writer based in Israel. With over 25 years of experience in the photo-video industry, Udi has built and sold several photography-related brands. Udi has a double degree in mass media communications and computer science.

Alex Baker: from diyphotography.netAlex Baker is a portrait and lifestyle driven photographer based in Valencia, Spain. She works on a range of projects from commercial to fine art and has had work featured in publications such as The Daily Mail, Conde Nast Traveller and El Mundo, and has exhibited work across Europe

David Williams: from diyphotography.netDave Williams is an accomplished travel photographer, writer, and best-selling author from the UK. He is also a photography educator and published Aurora expert. Dave has traveled extensively in recent years, capturing stunning images from around the world in a modified van. His work has been featured in various publications and he has worked with notable brands such as Skoda, EE, Boeing, Huawei, Microsoft, BMW, Conde Nast, Electronic Arts, Discovery, BBC, The Guardian, ESPN, NBC, and many others.

John Aldred: from diyphotography.netJohn Aldred is a photographer with over 20 years of experience in the portrait and commercial worlds. He is based in Scotland and has been an early adopter - and occasional beta tester - of almost every digital imaging technology in that time. As well as his creative visual work, John uses 3D printing, electronics and programming to create his own photography and filmmaking tools and consults for a number of brands across the industry.

Dunja Djudjic: from diyphotography.netDunja Djudjic is a multi-talented artist based in Novi Sad, Serbia. With 15 years of experience as a photographer, she specializes in capturing the beauty of nature, travel, and fine art. In addition to her photography, Dunja also expresses her creativity through writing, embroidery, and jewelry making.

Copyright © DIYPhotography 2006 - 2023 | About | Contact | Advertise | Write for DIYP | Full Disclosure | Privacy Policy