About 8 month ago, we shared an interview with Benjamin VonWong about his work in this video:
It’s the story of Eliza O’Neill, turned 5 years old a few days ago (Happy Birthday, Eliza!).
She was diagnosed one year ago with a rare terminal genetic disease, called Sanfilippo Syndrome-Type A. Her parents were told that they would have to watch her daughter fade away before their eyes.